Board of Directors
Cascade’s Board of Directors is comprised of volunteers who are representative of our bleeding disorder community consisting of consumers, treatment center staff, and other stakeholders.
Officers
Elizabeth Sandon-Kleiboer, Board President
Elizabeth Sandon-Kleiboer RN, BA, worked as a nurse in neonatal services and pediatric coagulation disorders for over 40 years before retiring in September 2020 from Spectrum Health/Helen DeVos Children’s Hospital in Grand Rapids, MI. As Nurse Manager of the Pediatric Coagulation Disorders Program for 25 years, she was responsible for staff supervision and development, grant management and reporting, and oversight of the 340B Factor Program. Beth served on the Hemophilia Alliance Board of Directors from 2013-19 and participated in advocacy for Factor Programs and Hemophilia Services on Capitol Hill in Washington, DC. Beth worked closely with the HTCs in the Region, including Cascade Hemophilia Consortium, to ensure resources for people with bleeding disorders and their families. As a person with a bleeding disorder and a member of a large family with significant negative outcomes from bleeding, Beth has a passion for and commitment to providing support and sustainable services to this community. Beth is married to Fred; they have three children, one of whom is following in Beth’s footsteps as a Pediatric Hematologist/Oncologist at Levine Children’s Hospital in Charlotte, NC. Beth is enjoying time to quilt, crochet, read and attend “Master Classes,” and looking forward to visiting her children and her ten siblings around the country!
Elizabeth Boelens, Vice President
Elizabeth Boelens was born and raised in West Michigan and is a graduate of Grand Valley State University. She is the executive assistant to the CEO at Service Express, a global technology company based in Grand Rapids. Prior to working at Service Express, she spent over 10 years in the health insurance industry, consulting with companies to lower their health care costs. She and her family have been active in the hemophilia community for several decades and have advocated on behalf of the 340B program with our lawmakers in Washington DC on two occasions. She is passionate about keeping access to bleeding disorder products affordable for all. She has spent many years serving on local community committees. Elizabeth has a son studying at Michigan Tech in the upper peninsula and a daughter in her senior year of high school. She lives in Grand Rapids and in her spare time loves reading, hiking and planning her next travel adventure.
Nancy Inverso, RN Secretary
Nancy in the Program Manager for Bronson Hemophilia Treatment Center in Kalamazoo, Michigan since 2015. As a registered nurse, Nancy has over 40 years of experience in patient care and management of physician practices. Nancy is currently the Great Lakes Region 5 representative on NHF’s Nurses Working Group.
As program manager, Nancy is responsible for coordination of Federal and Private grants, management of their 340B pharmacy program and direct patient care and case management for both adult and pediatric bleeding disorder patients. Nancy enjoys the combination of administrative work as well as building relationships with individuals and families. Nancy enjoys spending time with her children and her grandchild.
Kathy Price, Treasurer
Kathy is a Fiscal Officer and Accountant for the College of Human Medicine at Michigan State University. She has been at the university since September 2013. She is responsible for the fiscal operations in the Department of Pediatrics and Human Development in the academic, research, and clinical areas. She also has experience with the 340B program and the MSU Comprehensive Hemophilia program for the Center for Bleeding and Clotting Disorders.
Kathy received her B.A. in Business Administration and Accounting from Michigan State University and is currently working on her Masters in Healthcare Administration.
She currently lives in mid-Michigan with her husband. She has two grown boys with her eldest married and has 2 granddaughters. In her spare time, she enjoys reading, downhill skiing, golfing, camping, boating as well as spending time with her family.
Chris Roberson, MPH, J.D.
Chris Roberson is the Director of Compliance, Community Programs, and Research for the Indiana Hemophilia & Thrombosis Center (IHTC). He previously served as the Pharmacy Operations Director at the IHTC from 2004-2009. Mr. Roberson received his Bachelor’s degree from Penn State University, and a Master’s degree in Public Health and a Law degree from Indiana University. He is also a founding Board Member of the Community Health Clinic, Inc., in Topeka, Indiana, a non-profit genetics clinic treating patients from the Amish and other northeastern Indiana communities.Chief Medical Advisor
Michael Callaghan, MD, Board Member and Chief Medical Advisor
Michael Callaghan is Medical Director in Clinical Development at Agios Pharmaceuticals and continues to volunteer as an associate professor seeing patients in pediatric hematology, specializing in benign hematology at Children’s Hospital of Michigan in Detroit. Dr. Callaghan has been working in the field of hemostasis for more than 15 years and has published manuscripts in journals such as The New England Journal of Medicine, Nature Genetics, Developmental Cell, Blood, Journal of Thrombosis and Haemostasis, Journal of Pediatrics and Haemophilia.Directors
Randi Clites
Randi lives in Northeast Ohio with her husband Matt, Colton, and their three dogs. Colton has hemophilia and is a leukemia survivor. She is the Rare Disease Policy Director for Little Hercules Foundation and State Policy Director for the Ohio Bleeding Disorders Council.
Randi helped develop an annual Statehouse Day in 2008 for the hemophilia community that is still going strong and has engaged hundreds of families in State Advocacy. She was the advocacy coordinator for the Ohio Bleeding Disorders Council, which is a coalition of providers, patients, and nonprofits serving bleeding disorders patients, for over 10 years. She took her passion of working on policy to public office, serving as State Representative for the 75th House District during the 133rd General Assembly.
Randi earned her degree in Business Administration with a minor in Political Science from Hiram College.
John Fargo, DO, FAAP
John H. Fargo is the current Medical Director of the Akron Children’s Hospital’s Hemostasis and Thrombosis Center (HTC). He has been part of the Pediatric Hematology/Oncology Division at Akron Children’s Hospital since 2013. Prior to joining the team at Akron, John obtained his Doctor of Osteopathy at the University of New England College of Osteopathic Medicine in Biddeford, ME. He completed his pediatric residency at Phoenix Children’s Hospital/Maricopa Medical Center in Phoenix, AZ and his pediatric hematology/oncology fellowship at Children’s National Medical Center in Washington, DC. John remains collaborative in his bleeding and clotting disorder research interests between joining multi-institutional studies and supporting industry-sponsored trials. Outside of medicine, John is married with two wonderful children who keep him active with outdoor activities, traveling, and exploring different cultures.Erica Godsey, APRN, CNP
Erica Godsey received her ADN, BSN, and MSN degrees from The University of Toledo. Erica has been with the Northwest Ohio Hemophilia Treatment Center in Toledo, Ohio since 2015 as a certified Family Nurse Practitioner. She cares for bleeding disorder patients across the lifespan with a focus on pediatrics, adolescents and young adults. She currently leads her HTCs Collaborative Hematology/Gynecology Clinic which she developed, and is an avid supporter for correcting the disparities felt by women, girls, and those who menstruate. Erica is an advocate for improving healthcare policy and access to quality care across the bleeding disorder community. She has presented at NHF, volunteered in the WFH treatment room, and is an active member of Hemostasis and Thrombosis Research Society and Foundation for Women and Girls with Blood Disorders. Outside of the office Erica enjoys traveling across the US in her vintage motorhome with her husband and four children.
Susan Lerch, HFM Executive Director
Susan Fenters Lerch is an accomplished leader who has served in the non-profit sector for more than three decades. Sue joined HFM as the Executive Director in June 2014; however, she came to this role having previously served as the HFM Associate Director from 1983-1996. As the Executive Director Sue is responsible for statewide patient educational programming and advocacy services and also serves as the Great Lakes and Region V-East Hemophilia Treatment Centers’ Regional Director.
In 1997 Sue joined Make-A-Wish Foundation of Michigan as President and CEO until 2010 when she launched Autism Alliance of Michigan, served as the lead consultant in implementing World AIDS Day Detroit, initiated the Hospice of Michigan Foundation, and created Bring Joy consulting services.
Sue and her husband, Dan, have two grown children and are grandparents to Charlie and Margeaux Elise, the most adorable children ever – of course! Sue and Dan, together with their two rescue dogs Chip and Bree, reside in Ann Arbor.
Jim Mohnach
Jim Mohnach serves as the President of the Board of Directors for the Hemophilia Foundation of Michigan. In his professional life he is a marketing lead at Ford Motor Company where he has worked since 2018. Prior to that he held various leadership positions at GTB/Team Detroit the advertising agency for Ford Motor Company. He has been involved in the hemophilia community for almost 10 years. He’s so appreciative of the community and family provided by the people he’s been fortunate enough to meet within the bleeding disorders community. He loves seeing so many old friends at events like SpringFest and the Walk at the Detroit Zoo. In his free time, Jim loves spending time with his family, which includes his wife Lauren, son Aiden, and daughters Emma and Isla.Jim Munn, RN, MS
Jim Munn received his BS, MS, and BSN degrees from the University of Michigan. He is a certified Hemostasis Nurse through the ANCC. Mr. Munn has served as Chair, Vice-Chair, and Regional Representative for the National Hemophilia Foundation’s (NHF) Nurse Working Group, and as the U.S. Representative, Vice-Chair, and Chair for the World Federation of Hemophilia (WFH) Nursing Committee. Mr. Munn has served as a member, treasurer, vice-chair and is the current chair of the International Society on Thrombosis and Haemostasis (ISTH) Nurses Forum, which develops program content and arranges speakers for the annual ISTH meeting. Mr. Munn has presented lectures and authored publications related to bleeding and clottingStephanie Raymond, Cascade Executive Director
Stephanie has been with Cascade since, 1996, including 17 years serving as Associate Director. As Executive Director, she guides the daily operations of 28 full- and part-time staff. Stephanie also manages Cascade’s multimillion dollar funding program, supporting 18 Hemophilia Treatment Centers (HTCs) and 7 Hemophilia Foundations located in Michigan, Ohio and Indiana, fulfilling the mission and goals of Cascade.
She has extensive knowledge of the 340B Federal Drug Discount Program and is a dedicated advocate in Washington DC for the bleeding disorder community. Stephanie serves as a member of the Hemophilia Alliance Board of Directors and because of her experience administering grants, serves as a board member of the Hemophilia Alliance Foundation as co-chair of their grants committee.
Stephanie is married and together with her husband, Rodney, they are raising a very spoiled Boston Terrier named Winston. Stephanie feels very fortunate and thankful for the many long-time friendships made throughout her years at Cascade. “We have an exceptional region filled with many wonderful and dedicated people”.
Derek Robertson, MBA, JD, CHC
Derek Robertson is a consultant who brings with him a vast experience in government pricing programs. Derek also has extensive experience in Medicare and Medicaid reimbursement as well as the federal Medicaid Drug Rebate Program. In his regulatory practice, Derek advises his clients on how to stay in compliance with various federal laws, regulations and guidance related to anti kickback laws and federal drug pricing discount programs. Derek has worked extensively with hospitals and universities on federal grants management and, program income calculation and reporting. He presents nationally at conferences on government pricing programs, specialty pharmacy trends and conflicts of interest in healthcare.
Derek is currently the Managing Director of Apogenics, Inc. Apogenics provides 340B Program management services to Hemophilia Treatment Centers (HTCs) and conducts mock HRSA audits.
Over the past 30 years Derek has held various positions in the hemophilia community including, Director of Administration at the National Hemophilia Foundation, Finance Director of the Gulf States Hemophilia Diagnostic and Treatment Center at the University of Texas Health Science Center in Houston and Associate Director of Healthcare Policy at Centeon (now CSL Behring).
Derek holds an MBA from City University of New York – Baruch College, a law degree from the University of Houston Law Center and is Certified in Healthcare Compliance by the Health Care Compliance Association. He is licensed to practice law in both Texas (currently inactive) and Washington, DC.
William Sparrow
William Sparrow was hired by the Hemophilia Foundation of Michigan’s Board of Directors in 1994 as the founding Executive Director of the Cascade Hemophilia Consortium. With its independent Board of Directors, Cascade became one of the first 340B factor program in its tri-state area (Michigan, Ohio, and Indiana) with the mission of lowering the cost of clotting factor concentrates as new recombinant products came on the market. A few years later, Cascade began providing grant support to the Hemophilia Treatment Centers in Michigan, Ohio, and Indiana, as well as to the Hemophilia Foundation of Michigan. Bill has served on a number of boards, including on the executive committees of the National Hemophilia Foundation, Hemophilia Alliance, World Federation of Hemophilia-USA, and the Hemophilia Foundation of Michigan. He has enjoyed flying sailplanes and is expedition kayaking in the Great Lakes and the Mississippi, Ohio, Illinois, and Missouri Rivers. Bill lives in Ann Arbor with his wife Laura and several rescue cats with bad attitudes.